by adminbi | Jul 7, 2023 | Press
BOCA RATON, Fla. — There’s a new playground coming to Boca Raton that will help a young boy fighting for his life. At Pirates Cove, imagination takes over the playground, while reality sinks in for others like Jordan Ogman. Jordan is a fun-loving, 7-year-old...
by adminbi | Jun 19, 2023 | Press
BOCA RATON, Fla. — Seven-year-old Jordan Ogman plots courses to hunt for treasure from Pirate’s Cove at Boca Raton’s Patch Reef Park because in his words, “This pirate ship is the best in the town.” The playground right off Yamato Road may have the best...
by adminbi | Nov 2, 2020 | Press
Boca Raton’s Ogman Family Fights To Save Son From Rare Jewish Disease When a crisis strikes, everyone reacts differently. Some give up or become paralyzed. Others – like David and Stacey Ogman – jump into action. A year ago, their 4-year-old son, Jordan, was diagnosed...
by adminbi | Oct 15, 2020 | Press
Barry Byrne, M.D., Ph.D., receives “See The Light” Award from the Mathew Forbes Romer Foundation Oct. 15, 2020 — For families facing a devastating diagnosis of pediatric neurodegenerative genetic disease, Barry Byrne, M.D., Ph.D., provides a sense of hope and...
by adminbi | Mar 1, 2020 | Press
I recently met w/ the Ogman family & their 4-year-old son Jordan, who is living with TECPR2.Today, I stand w/ Jordan & 30 million other Americans living w/ rare diseases who are counting on Congress to give them hope by investing in rare disease research....
