by adminbi | Mar 1, 2020 | Press
I recently met w/ the Ogman family & their 4-year-old son Jordan, who is living with TECPR2.Today, I stand w/ Jordan & 30 million other Americans living w/ rare diseases who are counting on Congress to give them hope by investing in rare disease research....
by adminbi | Mar 1, 2020 | Press, Uncategorized
Imagine a family in a race against the clock to save their son. For David and Stacey Ogman, of Boca Raton, this is their reality as their 4-year-old son, Jordan, is battling an untreatable and incurable rare genetic disorder, TECPR2, which is fatal. As of now, there...
by adminbi | Mar 1, 2020 | Press
DEERFIELD BEACH, Fla. (CBS12) — The heart-tugging story of a 4-year-old Boca Raton boy battling a rare genetic disease and his parents’ desperate efforts to fund research to save the child’s life has now captured the attention of a local Congressman. Jordan Ogman’s...
