Imagine a family in a race against the clock to save their son. For David and Stacey Ogman, of Boca Raton, this is their reality as their 4-year-old son, Jordan, is battling an untreatable and incurable rare genetic disorder, TECPR2, which is fatal.
As of now, there is no treatment or cure, but the Ogmans are working non-stop to change that by trying to raise the $2.5 million needed for research and development by a world-renowned physician scientist at the University of Florida who’s currently working on gene therapy.