I recently met w/ the Ogman family & their 4-year-old son Jordan, who is living with TECPR2.
Today, I stand w/ Jordan & 30 million other Americans living w/ rare diseases who are counting on Congress to give them hope by investing in rare disease research. #RareDiseaseDay pic.twitter.com/r0BhGpAinx
— Rep. Ted Deutch (@RepTedDeutch) February 29, 2020